Provided below are resources for people living with cystic fibrosis. If you would like more information, please contact your state CF organisation and speak to the services team or social workers.
GENERAL
A Guide for Health Professionals
This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions.
Travel checklist
CFStrong medication checklist! So you don’t forget any necessary meds on your next trip!
SOCIAL WORK & PSYCHOLOGY
The Australian Clinical Practice Guidelines 2017
Guidelines for Social Work in Cystic Fibrosis. These guidelines provide recommendations for social work practice at development stages across the lifespan. These recommendations endeavour to accommodate the needs of each individual patient and the practices and systems of each CF care centre.
What about me?
A thesis written by Dr. Judith Glazner, who has worked extensively with the CF community in Melbourne, Australia. Dr. Glazner provides an insightful observation in her 2017 thesis study about the sibling experience and CF.
Getting the language right
A health practitioners guide to writing reports, letters, forms, and assessments for the NDIS
Depression, Anxiety and Cystic Fibrosis
Carer Help
The Carer Help website provides practical information, advice, and resources for individuals and their carers when death is a possibility. It is a comprehensive website to assist individuals with what to expect and how to empower themselves and their loved ones at different stages of this time
FACTSHEETS
Factsheet for educators
Factsheet for employers
Time Management
Why you need a GP
PHYSIOTHERAPY
Beam Feel Good
Beam Cystic Fibrosis is a resource to help people with CF feel good through movement, education, and wellbeing support. All the activities and information are targeted at people living with cystic fibrosis.
CF Physio
CFPhysio.com aims to provide continued professional development for physiotherapists working in Cystic Fibrosis care. This resource has been produced by a group of physiotherapists who specialise in CF across Australia with the aim of empowering individuals with CF to become involved and proactive in their healthcare journey.
